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Usher Syndrome awareness day

David Shepard Own the Equinox

On Saturday 19th September, father of two and CA Development Panel umpire, David Shepard will run a marathon to raise awareness and funds for Usher Syndrome, a rare genetic condition his five year old son Louis was born with.

Usher Syndrome causes deafness, blindness and balance issues and this year marks the first global Usher Syndrome Awareness Day.

The marathon will be run in conjunction with an Own the Equinox challenge around the globe. In the Southern Hemisphere the equinox in September marks the transition to longer days than nights. This symbolizes the future we want for Louis, a life full of light.

Help us Own the Equinox on behalf of Louis and the global #USHfamily. Together we can make Usher Syndrome history and provide light for those with the condition.

At the completion of the marathon there will be a celebration BBQ breakfast. You can join us to run or walk any distance from 450m to the full marathon or come down to give your support to the runners and enjoy the celebration.

All funds raised on the day go towards Usher Coalition, an organization who fund global research for a treatment and cure and support families such as ours. If you can’t join us on the day but would still like to contribute, please visit Dave’s fundraising page at https://usher-syndromeorg.presencehost.net/take-action/own-the-equinox-fundraisers/david-shepard.html

For more information contact Emily Shepard 0414 743 074 or email – louislookingforward@gmail.com